I have had a long-standing interest in how the rapidly expanding field of consumer health technologies can enhance health literacy and enhance participation. However, there is a lag between the uptake of such devices and the preparedness of both health professionals and healthcare systems to integrate such useful but also voluminous data. For the last four years, I have had the privilege of being on the team supervising Robab Abdolkhani’s Ph.D. thesis with Prof Kathleen Gray and Assoc Prof Ann Borda at the University of Melbourne. We’ve been examining the ubiquity of health wearables and what needs to happen so that the huge volumes of patient-generated health data (PGHD) can be utilized in routine clinical practices. During her Ph.D., Robab interviewed clinicians, health information specialists, and MedTech industry representatives with experience in remote patient monitoring (RPM) to identify data quality management (DQM) challenges. Then a codesign workshop was held with stakeholder groups and consumer representatives to co-design potential solutions. Then the findings were integrated with literature and policy review findings to construct a guideline with 19 recommendations across seven aspects of DQM which was validated through a Delphi survey of international health informatics and health information management experts.
You can read the publications here:
- Abdolkhani, R., Gray, K., Borda, A., & DeSouza, R. (2023). Recommendations for the quality management of patient-generated health data in remote patient monitoring: Mixed methods study. JMIR mHealth and uHealth, 11, e35917. https://doi.org/10.2196/35917
- Abdolkhani, R.,Gray, K.,Borda, A.,DeSouza, R. (2020). Quality assurance of health wearables data: Participatory workshop on barriers, solutions, and expectations In: JMIR mHealth and uHealth, 8, 1 – 11
- Abdolkhani, R.,Gray, K.,Borda, A.,DeSouza, R. (2019). Patient-generated health data management and quality challenges in remote patient monitoring In: JAMIA Open, 2, 471 – 478