My current role is as academic co-convenor of the The Data, Systems and Society Research Network (DSSRN), a collaborative research network across the University of Melbourne. DSSRN’s focus is building a community of research scholars, and data infrastructure, to support internal collaborations and external partnerships, around data, systems, and society. I also have also have an Honorary Senior Research Fellow role at The Health and Biomedical Informatics Centre (HaBIC) and my own consulting practice.
My interest in data-intensive transformations in health and wellness within the context of informationalization comes from my own research examining how being an active member of one’s ‘own health care team’ through the acquisition of knowledge and skills is a key feature of contemporary health care. In my own research I explored how in maternity, mothers to be, are encouraged to take responsibility (or responsibilized) for themselves and their foetus (and later infants) into being “expert patients”. This moral imperative “to know” reflects being a good mother and citizen.
My more recent research efforts at the Centre for Culture, Ethnicity and Health (CEH) based at North Richmond Community Health (NRCH), Melbourne explored the impact of the proliferation of mobile and wearable health technologies, and how these developments were reconfiguring power relations, relationships and practices in health care through the lens of health literacy, consumer participation and cultural competence/safety. Providing culturally competent services and communicating in culturally appropriate ways are necessary components of health literacy as they provide the conditions for allowing consumers and communities to engage in health and health care (Australian Commission on Safety and Quality in Health Care [ACSQHC], 2014, p.27). I am interested in the advent of the agentic consumer and how this subject position is intensified through digital health, and the health literacy demands of collecting and interpreting data often without the involvement of health professionals. In particular, how these consumer-oriented technologies designed to promote healthy living impact on marginalised communities and how structural inequalities in different contexts are inflected in and through technology use. While on the one hand, I think that emerging technologies can support high-quality patient centered care and enhance the management and sharing of health information and potentially facilitate consumer engagement in health care, I am also concerned that financial pressures on universal health services transfer responsibility away from the state and onto the individual or communities without the requisite support.
My research work in progress includes: whether health technologies provide an opportunity for addressing health inequalities; a critical health agenda around the intersections of race, class, gender, neoliberalism and health technology; examining how wearable health technologies can enhance consumer participation agendas eg through co-design and shared decision making; the implications of new health information technologies for the health care workforce; implications of new health information technologies; and data ethics in the context of the secondary use of clinical data and aggregation of patient data.
I have experience in community technology planning and evaluation, completing evaluations on: the use of ICT in early childhood education; community ICT planning, training and support; and a Digital Opportunities Project in an economically deprived part of Auckland, New Zealand. I established (and continue to maintain) the Aotearoa Ethnic Network (AEN) in 2005, a national listserv which has received awards for outstanding contribution to Race Relations in New Zealand. More recently, I have supervised three students doing the Health IT Project (ISYS90079) at the Health and Biomedical Informatics Centre (HaBIC) Research Centre in the Faculty of Medicine, Dentistry and Health Sciences, University of Melbourne. The focus of their projects were barriers and enablers to the uptake of wearable health technologies among Culturally and Linguistically Diverse (CALD) Communities. I am currently supervising one PhD at the University of Melbourne, Health and Biomedical Informatics Centre about Quality management of patient generated health data (PGHD) from wearables for clinical use.
More here about my own research in an interview with Wearable Technology Australia (WTA): http://www.wearable-technologies.com/2017/11/dr-ruth-de-souza-on-wearable-technology/
I have a passionate interest in culture and health. My main theoretical interests are feminist theory, postcolonial theory and critical qualitative research methodologies. My work includes empirical studies and theoretical investigations into key sites where health inequities are found, including refugee, migrant and indigenous communities; maternity and mental health. I am interested in expanding the anti-racist potential of cultural safety in health and social care in order to improve health care outcomes for marginalised groups through theory, practice and policy and to examine the role nurses and other health professionals can play in social justice. To this end, I have a specific interest in critical and self-reflexive approaches in nursing education. More recently, I have begun undertaking secondary research in the form of systematic and integrative reviews (summarising existing research) as a mechanism for supporting decision making in health and social care. You’ll find more about my scholarly activities below.
- ORCID ID: orcid.org/0000-0003-3862-5375
- Researcher ID: E-8565-2015
- Scopus Author ID: 6603404326
- Current research interests
- Current postgraduate research supervision
- Scholarly activity
- Research grants
- Refereed journal articles
- Research reports
- Edited Publications
- Sections in books
- Non-refereed journal articles
- Artist catalogue essays
Current research interests
While at CEH, I worked with Suneel Jethani and Danny Butt from the Research Unit in Public Cultures (RUPC) at Melbourne University to develop a research program on the use of patient-generated data in community health. Wearable technology platforms are dominated by the English-speaking middle-classes, (“the wealthy, worried and well” as Michael Paasche-Orlow suggests), limiting the community benefits of enhanced participation and health. The diffusion of mobile phones (that can also be used as health monitoring devices) indicates that these technologies will expand to a wider range of users. We organised a seminar and stakeholder consultation, supported by the Better Health Channel and the Research Unit in Public Cultures (RUPC) at Melbourne University in 2016 to explore how wearables can act as a form of participatory media, where client-generated information has the potential to inform care decisions, enhance consumer engagement and promote shared decision making. Inin February 2017, we held a pilot workshop on maternal digital literacies and the resulting manuscript is under consideration for publication. I am indebted to Youkyoung Lee and Bhargavi Battala who volunteered with me on this project
- 2017 Examiner: Masters of Public Health, School of Population Health, University of Auckland.
- 2015 Examiner: Doctor of Philosophy, University of Waikato, Political Science and Public Policy.
- 2014 Examiner: Doctor of Philosophy, School of Counselling, Human Services and Social Work, University of Auckland.
- 2014 Examiner: Doctor of Philosophy, School of Geography, University of Waikato.
- 2014 Examiner: Masters of Public Health, Department of Epidemiology & Preventive Medicine, School of Public Health and Preventive Medicine,University of Auckland.
- 2013 Examiner: Doctor of Philosophy, Faculty of Health Sciences, School of Nursing & Midwifery, Flinders University
- 2012 Examiner: Master of Development Studies, School of Geography, Environment and Earth Science. Victoria University of Wellington.
- 2010 Examiner: Master of Public Health, School of Population Health, University of Auckland.
- 2008 Examiner: Master of Arts (Psychology) Massey University.
- 2007 Examiner: Master of Arts (Psychology) Massey University.
- 2006 Examiner: Master of Arts (Social Policy) Massey University.
- 2006 Examiner: Master of Arts (Nursing) Victoria University.
- 2015 National Health and Medical Research Council’s (NHMRC) Project Grants funding
- 2015 Health Research Council of New Zealand: Maori Health Committee programme proposal
- 2014 Health Research Council of New Zealand: Maori Health Committee programme proposal
- 2011 Lottery Health Research Committee – New Zealand Lotteries Commission
- 2010 Lottery Health Research Committee – New Zealand Lotteries Commission
- 2007 Marsden Fund Fast Start applications (contestable fund administered by the Royal Society of New Zealand)
- 2005 Health Research Council of New Zealand: Research Proposals for funding
Editorial Board member of the journals: Transcultural Nursing, The Hive (Publication of the Australian College of Nursing), Women’s Studies Journal of New Zealand.
Journal peer review activities
Ethnicity and Health, Women’s Studies Journal of New Zealand, The Australian Journal of Indigenous Education, AlterNative, Collegian, International Journal of Migration and Border Studies (IJMBS), Kotuitui: New Zealand Journal of Social Sciences Online. (Massey University), Journal of Advanced Nursing, Transcultural Nursing, Contemporary Nurse, Diversity in Health and Social Care, Paediatric Child Health Nursing, International Journal of Mental Health & Addiction, Journal of Palliative Care, Journal for the Advancement of Mental Health, Health & Social Care in the Community, Health and Place, Maternal and Child Health Journal, Social Work Review, The American Journal of Psychiatric Rehabilitation, Women’s Health and Urban Life journal, Bulletin of Information Technology Research, SIGNS, SITES, Australian Journal of Adult Learning, Journal of Neonatal, Whitireia Nursing Journal, Journal of Immigrant & Refugee Studies.
- 2014 A/Prof Yelena Tsarenko, Dr Dewi Tojib, Dr RoseAnne Misajon, Dr Ruth DeSouza. Social determinants of wellbeing for ethnic women: Improving support services for recent immigrants. Faculty Interdisciplinary Research Grant Scheme, Faculty of Business and Economics Monash University.
- 2014: Dr Mark Symmons, Dr Meredith McIntyre, Dr Ruth DeSouza, Tony Woods, Lesley Macgibbon. ‘Optimising direct entry success: an online transition course for students beginning university at second year’. Office for Learning and Teaching (OLT) Innovation and Development Grant.
- 2009: Ruth DeSouza. Vice Chancellor’s Staff PhD Completion Award. AUT University.
- 2009: Ruth DeSouza. Jenni Broom, Jill Conway: ‘Research into the Resettlement Experience and Special Needs of Women at Risk: an evaluation to create best practice support systems’. Lotteries Community Sector Research Fund.
- 2008: Ruth DeSouza .Migrant fathers’ experiences of fathering in a new country: Implications for health and social service providers. AUT Internal Contestable Grant.
- 2007: Professor Kathryn McPherson, Dr Deborah Payne, Dr Dianne Roy, Professor Cynthia Farquhar, Dr Matire Harwood, Ms Ruth DeSouza, Associate Professor Lynne Giddings. Improving health interventions and support for mothers experiencing disability.
- 2006. Waller, N., DeSouza, R. Trauma and migrant women, Internal contestable grant.
- 2006. Gao, W., DeSouza, R. and Paterson, J. Pilot study: The uptake of cervical screening in Chinese immigrants in Auckland Internal contestable grant.
- 2006: Abbot, M. and DeSouza, R. Barriers and enablers to help seeking for problem gamblers and families. Ministry of Health.
- 2005 McPherson, K., Diesfeld, K. et al.,Evaluation of Vocational Rehabilitation under the IPRC Act. Accident Compensation Corporation.
- 2005: DeSouza, R. and Macfarlane, E. The adjustment to parenting for ethnic women and the implications for health policy and service delivery, Families Commission Blue Skies Funding.
- 2005: Williamson, A. and DeSouza, R Evaluation of the use of ICT in early childhood education City of Manukau Education Trust.
- 2005: Williamson, A. and DeSouza, R. Evaluation of youth skills project, Enterprise Waitakere.
- 2005: DeSouza, R. Bellringer, M. and Garrett, N. Access Issues for Chinese People in New Zealand Accident Compensation Corporation (ACC).
- 2005: DeSouza, R. and Macfarlane, E. The adjustment to parenting for ethnic women and the implications for health policy and service delivery, Royal New Zealand Plunket volunteers.
- 2004. Guerin, B., DeSouza R. and Dunstan, S. First National Refugee Research Conference. SPEaR.
- 2004: Craig, B., Williamson, A., and DeSouza, R. National survey of community ICT planning, training and support. Department of Labour.
- 2003: Williamson, A., and DeSouza R. Evaluation of Otara Digital Opportunities Project City of Manukau Education Trust.
- Ion, R., DeSouza, R., Kerin, T., Teaching ethics: Intersectionality, care failure and moral courage, Nurse Education Today (2017), doi:10.1016/j.nedt.2017.12.023
- De Souza, R. (February 13, 2018). Interview with Texta Queen. João Roque Literary Journal
- De Souza, R. (2017). Review: Nurses’ views on the impact of mass media on the public perception of nursing and nurse–service user interactions . Journal of Research in Nursing, 0(0) 1–2. https://dx.doi.org/10.1177/1744987117736600
- Silverstein, J., D’Cruz, C., DeSouza, R., Khatun, S., & McKinnon, C. (2017). Intersectionality, Resistance, and History-Making. Lilith: A feminist history journal (SPECIAL SECTION, Intersections in History: Articles from the 2016 Australian Women’s History Network Conference), 23, 15-23.
- Crawford, J., Cooper, S., Cant, R., & DeSouza, R. (2017). The impact of walk-in centres and GP co-operatives on emergency department presentations: A systematic review of the literature. International Emergency Nursing. https://doi.org/10.1016/j.ienj.2017.04.002
- Nairn, R., DeSouza, R., Moewaka Barnes, A., Rankine, J., Borell, B., McCreanor, T. (2014). Nursing in media saturated societies: Implications for cultural safety in nursing practice in Aotearoa New Zealand. Journal of Research in Nursing, 19, 477-487. doi:10.1177/1744987114546724
- De Souza, R. (2014). ‘This child is a planned baby’: skilled migrant fathers and reproductive decision-making. Journal of Advanced Nursing. doi: 10.1111/jan.12448
- DeSouza, R. (2014). Enhancing the role of fathers. Kai Tiaki: Nursing New Zealand, 20(2), 26-27.
- DeSouza, R. (2014). One woman’s empowerment is another’s oppression: Korean migrant mothers on giving birth in Aotearoa New Zealand. Journal of Transcultural Nursing. doi: 10.1177/1043659614523472
- DeSouza, R. (2013). Who is a ‘good’ mother?: Moving beyond individual mothering to examine how mothers are produced historically and socially. Australian Journal of Child and Family Health Nursing, 10(2), 15-18.
- DeSouza, R. (2013). Regulating migrant maternity: Nursing and midwifery’s emancipatory aims and assimilatory practices. Nursing Inquiry, 20(4), 293-304. doi: 10.1111/nin.12020.
- DeSouza, R., & Cormack, D. (2009) Returning the indigenous to the centre: a view from Aotearoa/New Zealand. Diversity in health and care, 16(4), 219-221.
- Gao, W., DeSouza, R., Paterson, J., & Lu, T. (2008) Factors affecting uptake of cervical cancer screening among Chinese women in New Zealand. International Journal of Gynecology & Obstetrics, International Journal of Gynecology and Obstetrics,103 (1) 76–82.
- Gao, W., DeSouza, R., Paterson, J., & Lu, T. (2008). Demographic predictors of cervical cancer screening in Chinese women in New Zealand. New Zealand Medical Journal, 121 (1277), 8-17.
- DeSouza, R. (2008). Wellness for all: the possibilities of cultural safety and cultural competence in New Zealand. Journal of Research in Nursing, 13(2), 125-135
- DeSouza, R. (2007). Women, Portuguese culture and Diaspora: Women from Goa in New Zealand and cultural adaptation. Campus Social. (3/4 )103-118.
- DeSouza, R. (2007). Walking a tightrope: Asian health research in New Zealand. Diversity in health and Social Care., 4(1), 9-21.
- Clarke, D., Abbott, M., DeSouza, R., & Bellringer, M. (2007). An overview of help seeking by problem gamblers and their families including barriers to and relevance of services. International Journal of Mental Health and Addiction, 5(4), 292-306.
- DeSouza, R. (2006). Sailing in a new direction: Multicultural mental health in New Zealand. Australian e-Journal for the Advancement of Mental Health 5(2).
- De Souza, R. (2006). Researching the health needs of elderly Indian migrants in New Zealand. Indian Journal of Gerontology, 20 (1&2), 159-170.
- De Souza, R. (2005). Transforming possibilities of care: Goan migrant motherhood in New Zealand. Contemporary Nurse, 20 (1), 87 – 101.
- De Souza, R. (2004). Motherhood, migration and methodology: Giving voice to the “other”. The Qualitative Report. 9 (3), 463-482.
- Williamson, A., Kennedy, D. M., McNaught, C. and De Souza, R. (2003). Issues of intellectual capital and intellectual property in educational software development teams. Australian Journal of Educational Technology, 19(3), 339-355.
- DeSouza, R. (2012). Doing It for Ourselves: Refugee women on their own in New Zealand (pdf full report). Auckland: Refugee Services.
- McPherson, K., Diesfeld K, Schluter P, Travalglia S, Ryan B, DeSouza R, Boocock M, Harwood M, LaGrow S, Callaghan K, Gorman D, Tuiqereqere D. Evaluation of Vocational Rehabilitation under the Injury Prevention Rehabilitation and Compensation (IPRC) Act 2001 (2007). (A report commissioned by the Accident Compensation Corporation New Zealand). Auckland: AUT University
- Bellringer, M., Pulford, J., Abbott, M., DeSouza, R., & Clarke, D. (2007). Problem gambling: Barriers to help seeking behaviours [Final draft] (Technical). Auckland: Ministry of Health.
- DeSouza, R. (2006). New spaces and possibilities: The adjustment to parenthood for new migrant mothers. Wellington: Families Commission (pdf blueskies-desouza).
- Williamson, A., & DeSouza, R. (2006). Direct qualitative analysis of data from digital audio sources. Waitakere City: Wairua Consulting Limited.
- DeSouza, R., & Garrett, N. (2005). Access issues for Chinese people in New Zealand. Auckland: Auckland University of Technology (access_issues).
- Williamson, A., & DeSouza, R. (2003). Evaluation of the Otara Digital Opportunities Project. Auckland, NZ: UNITEC Centre for IT Research.
- DeSouza, R. (Winter, 2016). Disaster health. Receiving the stranger. The Hive (Australian College of Nursing), 14(12).
- DeSouza, R. (Autumn, 2016). Indigenous and Multicultural health. Embracing uncertain ground, multicultural health. The Hive (Australian College of Nursing), 13(13).
- DeSouza, R. (Summer2014/15). Passion and knowledge: The craft of being a mental health nurse. The Hive (Australian College of Nursing), 8(10-11).
- DeSouza, R. (2012). Celebrating our differences to make nursing stronger. Kai Tiaki: Nursing New Zealand, 18(7) .
- DeSouza, R. (2006). Walking upright here: Countering prevailing discourses through reflexivity and methodological pluralism. Muddy Creek Press, New Zealand
- Williamson, A., & DeSouza, R. (Eds.). (2008). Researching with communities. Auckland: Muddy Creek Press.
- De Souza, R., (2007). Faith and ethnic communities. Aotearoa Ethnic Network, 2(2). Faith. ISSN 1177-3472.
- DeSouza, R., & Williamson, A. (2007). Aotearoa Ethnic Network Journal, 2(1): ICT. ISSN 1177-3472.
- DeSouza, R., & Williamson, A. (2006). Aotearoa Ethnic Network Journal, 1(2): Creativity. ISSN 1177-3472.
- DeSouza, R., & Williamson, A. (2006). Aotearoa Ethnic Network Journal, 1(1). ISSN 1177-3472.
- O’Brien, T., De Souza, R. & Baker, M. (2017). Providing culturally safe care. In P. Barker (Ed.), Psychiatric and mental health nursing: The craft of caring (Third ed). London: Arnold.
- De Souza, R. (in press). Going Without: Migrant Mothers, Food and the Postnatal Ward in New Zealand. In F. Guignard and T. Cassidy (Eds.), Moving Meals and Migrant Mothers. Toronto: University of Toronto Press.
- De Souza, R. (2015). Navigating the ethics in cultural safety. In D. Wepa (Ed.), Cultural safety. Port Melbourne: Cambridge University Press: 111-124.
- De Souza, R. (2015). Culturally safe care for ethnically and religiously diverse communities. In D. Wepa (Ed.), Cultural safety. Port Melbourne: Cambridge University Press: 189-203.
- Wood, P., Bradley, P., & De Souza, R. (2012). Mental Health in Australia and New Zealand. In R. Elder, K. Evans & D. Nizette (Eds.), Practical perspectives in psychiatric and mental health nursing (Third edition). New South Wales: Mosby, Elsevier Australia.
- DeSouza, R (2012). Power dynamics in communication. In S. Shaw , A. Haxell and T. Weblemoe (Eds.), Lifespan development and commmunication. Auckland: Oxford University Press.
- DeSouza, R. (2011). ‘All of me meets here, an alchemy of parts’ – Negotiating my identities in New Zealand. Localizing Asia in Aotearoa. P. Voci and J. Leckie. Wellington, Dunmore Publishing: 231-245.
- DeSouza, R. (2010). New mothers in a new land: Indian migrant mothers talk. India in New Zealand: Local identities, global relations. S. Bandyopadhyay. Dunedin, Otago University Press: 207-217.
- McNeill, H., Paterson, J., Sundborn, G., DeSouza, R., Weblemoe, T., McKinney, C., et al. (2009). Culture health and wellbeing. In S. Shaw & B. Deed (Eds.), Health and environment in Aotearoa/New Zealand (pp. 95-124). Auckland: Oxford University Press.
- O’Brien, T., Morrison-Ngatai, E., & De Souza, R. (2009). Providing culturally safe care In P. Barker (Ed.), Psychiatric and mental health nursing: The craft of caring (Second ed., pp. 635-643). London: Arnold.
- Wood, P., Bradley, P., & De Souza, R. (2008). Mental Health in Australia and New Zealand. In R. Elder, K. Evans & D. Nizette (Eds.), Practical perspectives in psychiatric and mental health nursing (Second ed., pp. 86-107). New South Wales: Mosby, Elsevier Australia.
- DeSouza, R. (2007). Sifting out the sweetness: Migrant motherhood in New Zealand. In Liamputtong, P. (Ed.). Reproduction, Childbearing and Motherhood: A Cross-Cultural Perspective (239-251). New York: Nova Science Publishers.
- Pavagada, R., DeSouza, R. (2007). Culture and mental health care in New Zealand: indigenous and non-indigenous people. In K. Bhui & D. Bhugra (Eds.), Culture and mental health (pp. 245-260). London: Hodder Arnold.
- DeSouza, R. (Jan, 2007). Multicultural relationships in supervision. In D. Wepa (Ed), Clinical supervision in the health professions: The New Zealand experience. Auckland: Pearson Education.
- DeSouza, R. (2005). Working with migrant and refugee women. In A. Hodren (Ed.), Royal New Zealand Plunket Society National Resource Manual. (pp. 72-77). Wellington: Royal New Zealand Plunket Society.
- DeSouza, R. (2005). Postnatal mental health. In A. Hodren (Ed.), Royal New Zealand Plunket Society National Resource Manual. (pp. 99-113) Wellington: Royal New Zealand Plunket Society.
- Williamson, A., Kennedy, D. M., DeSouza, R., & McNaught, C. (2005). Managing intellectual capital and intellectual property within software development communities of practice. In E. Coakes & S. Clarke (Eds.), Encyclopedia of Communities of Practice in Information and Knowledge Management (pp. 364-374). Hershey, PA: Idea Group.
- De Souza, R. (2004). Working with refugees and migrants. In D. Wepa (Ed.), Cultural safety (pp. 122-133). Auckland: Pearson Education New Zealand.
- Wood, P., Bradley, P., & De Souza, R. (2004). Mental Health in Australia and New Zealand. In R. Elder, K. Evans & D. Nizette (Eds.), Practical perspectives in psychiatric and mental health nursing (pp. 80-98). New South Wales: Elsevier Australia.
- Peach, J, Ehau, N. De Souza, R, Nonu-Reid, E. (1997). Documenting the cultural dimension of practice. In J. Richmond. (Ed.), Nursing Documentation: Writing what we do. Melbourne: Ausmed.
- DeSouza, R. (2015). Medical pluralism: Supporting co-existing diverse therapeutic traditions in mental health. Australian Mosaic (FECCA). 41, 34-36.
- DeSouza, R. (2008). Accessing nursing workforce information.(Letter to the editor). Kai Tiaki: Nursing New Zealand, 14.7(1), 3.
- Gao, W., DeSouza, R., Paterson, J., & Lu, T. (2008). Having more knowledge of cervical cancer does not increase uptake of screening in Chinese women: findings from a New Zealand study. New Zealand Medical Journal, 121 (1277), 106-107.
- DeSouza, R. (2006). Experiences of migrant mothers. Kai Tiaki: Nursing New Zealand, 12.11(1), 3.
- DeSouza, R. (2007). Students questions prompt response. Kai Tiaki: Nursing New Zealand, 13.1(1), 4.
- Tufunga Arts Trust: Lotus in Bloom 9th October -22nd November 2015,catalogue essay, Mangere Arts Centre, Auckland.
- Bepen Bhana: Postcards from the Edge 4 May-7 July 2013 catalogue essay in Postcards from the Edge, a solo exhibition by Auckland-based artist Bepen Bhana exploring the history of New Zealand’s landscape in painting and as a backdrop for Bollywood films, at Te Tuhi Centre for the Arts, Auckland.